MND
This is a list of existing blog posts that specifically relate to MND.
Smile, and the world smiles with you, MND …
Why not smile if you can, even with such a thing as MND/ALS? Since the age of 40 I've worn daily contact lenses, or glasses occasionally. Three weeks ago I was furious: it was 11pm, I was tired, and I'd tried time and time again to take the lenses out but had failed...
40 days … and a different voice
Today is the 40th of these scribblings. We've had 39 days of me rattling the keyboard and 39 days of you struggling through the verbiage, so I thought...
Before, After …. and Now
Sorry about the pictures! It was a bit of fun. Just over six weeks ago I challenged friends to join me in a Lockdown Project: no shaving for the duration. Well, I didn't expect it to go on for so long, so a couple of days ago the hairiness was removed. Above you...
This and that ….
First, the Rather Serious. Talking to myself, yet again I have to ask why I'm doing this. It's easy to lose sight of the reasons, especially when I see that in the last week or two there's been a lot about my own background and experiences. Perhaps I've drifted...
Mulling ….. and just a little more about MND
I was sitting in my roof garden yesterday, a beautiful day, warm, quiet, calm, with London air the cleanest for generations, and I was mulling on a remarkable turn of events. The illness has made it increasingly difficult for me to socialise - the speaking is slow,...
Dear Readers ….
I started the blog with four broad intentions: periodically to let friends know how I am; to write down some unusual incidents from the past as a sort of record; to comment on current events if I felt I had anything to say (because the physical voice might not be...
MND and me …. or A Day of Two Halves
Today, a short story with a long attachment. The story tells what happened on the day of the diagnosis. The longer attachment describes how the bulbar version of motor neurone disease / amyotrophic lateral sclerosis is affecting me, more than 12 months after I first...
Motor Neurone Disease / ALS, so don’t read if you’re squeamish ….
The title says it all, so if you're not easy with this topic come back tomorrow. Anyone reading here might already have expertise in or experience of the MND/ALS world; others might have browsed the internet. Some could be scientists or medics, some might already...
The 12 Days of Blogging …. Why? And more questions …..
This blog began on 1 April. If anyone is still reading it I hope they did start at the beginning: that should put everything into context. It's a self-imposed challenge, frankly. A couple of days ago I started wondering if it was such a good idea after all, and so...
Heroes, and more ….. a tribute
These are truly difficult days for everyone as we try to outwit the virus, huddling in corners in the hope that it will slink away and burn itself out. And quite rightly we salute the multitudes of hospital and emergency workers and all the teams that support them as...
It’s probably time I talked about Dignitas ……
It's probably time I talked about Dignitas and my motor neurone disease, at least to get some of it out of the way. If this isn't something you're interested in, please skip it. No idea what tomorrow's will be, but expect something lighter and very different. For...