Since starting this blog in April last year I’ve tried to keep the illness in the background, or at least in parallel with other things I’ve been writing about. The inevitable has happened though. It’s now really taken over my daily life. Most thoughts and efforts throughout the day, and often through the night, are focused on my own version of motor neurone disease / amyotrophic lateral sclerosis. How I cope with it. How it now controls me.
The blog itself has suffered recently, I feel. It’s still a welcome distraction from the suffering, but it’s become more and more of an effort and I sense the content is getting more and more trivial as I struggle to find and articulate topics.
Facing the facts, the blogging will continue but there will be more on the illness itself. That could be upsetting so I’ll try to keep each entry short and, if possible, light-hearted as well as serious. Perhaps a little bit of my daily life each time. And non-MND things if they’re sufficiently interesting.
No idea how it will go. Let’s see. I’ll be back in a few days.