28 Sep, 2021

The Road Ahead …

Since starting this blog in April last year I’ve tried to keep the illness in the background, or at least in parallel with other things I’ve been writing about.  The inevitable has happened though.  It’s now really taken over my daily life.  Most thoughts and efforts throughout the day, and often through the night, are focused on my own version of motor neurone disease / amyotrophic lateral sclerosis.  How I cope with it.  How it now controls me.

The blog itself has suffered recently, I feel.  It’s still a welcome distraction from the suffering, but it’s become more and more of an effort and I sense the content is getting more and more trivial as I struggle to find and articulate topics.

Facing the facts, the blogging will continue but there will be more on the illness itself.  That could be upsetting so I’ll try to keep each entry short and, if possible, light-hearted as well as serious.  Perhaps a little bit of my daily life each time.  And non-MND things if they’re sufficiently interesting.

No idea how it will go.  Let’s see.  I’ll be back in a few days.

6 Comments

  1. My heart aches for you as every day becomes more of a struggle. Your blog has been a gift to all your friends and I hope you’ll continue it occasionally for as long as you’re able. You’re always in my prayers.

    Reply
  2. David your blogs have kept me and mine in touch with you in such a lovely way. We have marvelled at your stories been amazed at your courage and been reminded in so many ways how special a person you are but, the last thing anyone wants is for it to become difficult for you so we hope to hear from you when you feel able and I can send direct emails to keep in touch but I won’t expect an answer. Love as always.
    Shonagh and Family

    Reply
  3. Rest assured old son that whatever you include in your blog, on whatever subject, will be welcomed and appreciated by your readers as the heartfelt, warm and generous writing for which you have become known.

    Reply
  4. Your other friends above have said it all really. I wish I could wave a wand and give you some respite from the onslaught of this horrible disease. But alas, the ‘fairy dust’ I used to ‘sprinkle’ over my children when they were poorly or hurt has no power in the adult world else I would be sending you tons of the stuff. This blog has been a wonderful way for us all to keep in touch with you and we have all loved reading about your exploits around the world and your thoughts on various subjects. You have amazed everyone with your stoicism and humour. Frankly I cannot find the words to say how much I admire you but as Shonagh says, this must not become a burden. Any communication, however and whenever it comes is a gift. Not something any of us expect on a regular basis. We all send our love including mother. xxxxx

    Reply
  5. David, I have enjoyed your blog and reading about your interesting life only hear little snips about where you were
    and what you were doing when we visit Aunt now I know a lot more
    Sorry things I not good love always xxxs

    Reply
  6. The brilliant thing about your blog DP, is that is combines the fascinating, nostalgic, informative and when it dips into the trivial, it it all the more interesting for it.

    Keep going as long as you derive some pleasure from it. But know that we love it, even when its tough reading 👏👊🏼

    Reply

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