A reminder to myself: the blog is multi-purpose.
Triggered by the illness and a life shorter than expected, it gave me a hobby and a focus. Time to tell stories from my life. Time to say things I’ve not said in the past. Time occasionally to comment on current events. And for the motor neurone disease, time to track the way it affects me; to learn from it; to share the experience with other sufferers and their carers and friends; and hopefully to help them in some way.
Then in early December, another purpose: to use the blog to promote and support research. We must get answers. People can’t be allowed to suffer like this. We need prevention, treatment, and cure. Help, please.
So, on 2 December the Fund was established – see the bottom of every page in the blog. Thank you again, Tony.
Then on 14 March we did the Zoom Talk – see ‘Zoom Talk’ at the top of every page here. Thank you again, Minji and Tim.
Tim has also started his own project, via social media, the MNDArtChallenge. Thank you again, Tim.
The ‘Zoom Talk’ video was quite an effort: 70 minutes of input from Minji, Tim, Tony, me, Brian the MNDA Director of Research and Lesley who supports a change in British law regarding assisted dying. We wanted people to watch it, to think about it, and to recommend it to others.
For a number of reasons the opening music, the introductions, and the closing music don’t appear in the recording. It starts when we began the discussion, almost mid-sentence. It’s rather abrupt. We all felt that a short trailer might help, so the other day Tim and I did one.
It’s just over two minutes. It’s here:
If you know anyone who might sympathise, who might want to help, do send them the link to the trailer. At the end it gives links to the full Zoom Talk, to the Fund, and to the Challenge, hoping they will be generous.
Actually, here’s a challenge! Send the trailer link (https://youtu.be/EHD0J3vhMMA) to three people. Ask them to watch it. Then challenge them to send it to three others. Can’t be that difficult, can it?