13 Mar, 2021

All the latest ….

Every few months since the blog started I’ve provided an update on how motor neurone disease – amyotrophic lateral sclerosis – is affecting me.  It never makes for comfortable reading, but it was the terminal illness and the shortened life that it is forcing on me that prompted me to start.  Readers with no known connection to MND sufferers can learn about it if they wish. Those who are actually suffering or are caring for someone with the illness might find echoes of their experience and perhaps some comfort in sharing.

To my knowledge I had never met anyone with MND before my diagnosis.  They say a GP can go for 30 years without having a sufferer as a patient.  In the almost twelve months since the blog started a remarkable number of friends and other readers have told me of relatives and colleagues who are or were similarly afflicted.  It’s been an eye-opener.

Anyway, the latest update is here.  I’ve tried to cover what’s happening to the body but as I’ve said before, don’t read it if you’re squeamish.

That’s it for today.  Thank you.

2 Comments

  1. Thank you, again, for sharing. It’s very hard to read but even harder to write, I’m sure, and unimaginably hard for you to live with this awful disease. As always, your courage and fortitide is amazing. Big hug and love x

    Reply
  2. As always brutally honest but with a fortitude that quite literally leaves me in awe. Would that we could relieve you of some of the symptoms if only for a while but alas that cannot be. We can only accompany you on the journey and hope that were we ever to have to suffer in a similar way we would be able to muster a fraction of your courage.

    Reply

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