Breakfast. I’m talking breakfasts, not Monty.
Would you like to join me? What’s your choice? Eggs scrambled, fried, poached or boiled? Bacon? Baked beans? Hash browns? Mushrooms? Sausages – how many? Black pudding or not? Fried tomatoes? Chips? Sauce? Toast – white, brown, how many? Butter? Tea – what type? Coffee? Juice?
Doesn’t it look good?!
My own breakfast today was this. Two bottles (400ml total) of Ensure, a medium thick liquid. One third of a bottle of Procal (40ml of the 120ml, the rest taken later). 10ml Riluzole, the only medication authorised for MND in UK – it’s supposed to extend life expectancy by up to eighteen months. 10ml of a laxative. 5ml of Carbocisteine, which helps to thin the mucus in the mouth. And 200ml of water, boiled and then cooled.
Actually that’s my breakfast every day, through the PEG tube into the stomach. It’s quite a lot and if it goes in too quickly it can hurt, so I don’t syringe. I pour it slowly into the open syringe case and then gravity does its work. Preparing and ‘consuming’ breakfast takes about 50 minutes.
So that’s breakfast for David these days. The last time I tasted any of your breakfast was about nine months ago, on the journey from ‘normal’ to ‘small and bite-sized’ to minced to puréed to liquid.
If you know anyone with MND/ALS, tell them this regime isn’t so bad. Of course I miss ‘real food’. And drink! I miss them badly. But since mid-November when the PEG was inserted, life has settled into a daily rhythm of ‘feeds’. It’s boring but there’s no discomfort or pain. It keeps me going. And quite unexpectedly, little by little I seem to be gaining weight! In the 15 months from diagnosis to PEG I lost 15 kg. In the three months since the operation I’ve gained three kilos. So do assure them that the PEG is worth having. Thank you.
Could I have some of your baked beans, please ….. ?