Hello again. Back blogging, in a way.
In the DP world these last two weeks certainly allowed a lot of staring – see the last blog entry if you don’t understand that. The walls the windows, the garden, all provided rest for the spirit.
TV, which I watch rarely these days, did the opposite. The devastating events in Afghanistan and the deep shame that I feel our countries bear hit me hard, and probably many of you too. For some time a Swedish friend has been helping Afghans to settle in her country, and a German friend the same in Berlin. Those are lucky people but they must be utterly torn now to see what’s happened, and terrified for the fate of family and friends still there. It was so painful that I watched even less TV than normal, reading the news briefly on the internet. Fortunately I wasn’t blogging. Couldn’t have resisted throwing everything I could muster into rants. Calm down, DP.
Sorry to say the body hasn’t been doing too well either. The new non-MND-related health problem hasn’t gone. The antibiotic might have cleared up the infection but it didn’t stop the actual problem. I’m now on another drug which should be tackling it in a different way but which will take some time to work. As a result I’m still being woken a number of times each night, the worst being nine, and each time brings risks of MND coughing and choking, so there’s been precious little sleep.
With MND/ALS weariness and now over two weeks of accumulating sleep deprivation this hitherto pretty strong 73-year-old body is feeling the strain. It’s extreme exhaustion, and I’ve had to spend the last few days mainly in or on the bed. Never had anything like it before. Even typing an email, now mostly one-handed regrettably, leaves me gasping.
It’s temporary we hope. When good sleeps return, energy should return.
Friends, this blog was started so that I could say some hopefully interesting things about my life before the terminal illness terminated it. My health was to be just the backdrop, referred to occasionally to help me, you and others to understand how this cruel illness works. I do hate making health ‘front of house’, so today’s entry is unusual. It’s here today though to explain why I might not be too prolific for a while. Or perhaps this type of entry will be more common, who knows? All I can say is that optimism still reigns in the DP world, so I’ll leave it at that.